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ITS MY DNA!

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Newborn Genetic Testing
(AKA "Newborn Screening")



"[N]ewborn screening is the largest genetic testing effort in the nation and is primarily
performed by state public health laboratories."

Parent Forms to take children out

National Newborn Genetic Testing Program

Minnesota Newborn Genetic Testing Program

Petition to Dismantle MN's Baby DNA Warehouse

- Genomics and Disease Prevention, a book published on the website of the U.S.
Centers for Disease Control and Prevention



Taking Baby DNA; Photo from 2005 MN Department of health provider manual



Is your DNA private data or public information? Take our survey and let us know!

Citizens join CCHC's president to deliver petitions to the Governor opposing "DNA Warehouse"

 

National Newborn Genetic Testing Program

   The Untold PKU Testing Story...and Why it Challenges Government-Mandated Newborn (Genetic) Screening
   A Critical Analysis of the Implications for Genetic Privacy and Consent Rights in Congress' Proposed 'Newborn Screening Saves Lives Act of 2007'

 

Minnesota Newborn Genetic Testing Program

CCHC Press Conference Challenges Illegal Government Baby DNA Warehousing

CCHC calls on Governor Pawlenty to require health department compliance with state genetic privacy law for baby DNA - 12/10/08
(To Contact Governor Pawlenty)

Gov. Pawlenty Protects Genetic Privacy Rights


MN Commissioner of Health Lobbies for Intrusive "DNA Warehouse" Legislation

Minnesota Commissioner of Health, Sanne Magnan M.D., came herself to the Minnesota State Capitol to lobby legislators to vote yes on the intrusive "DNA Warehouse" and government research bill. Health department lobbyists and lobbyists from other organizations joined her.

Sen. Lynch listed the following supporters of the bill: Commissioner Magnan, MN Department of Health, Minnesota Medical Association, Minnesota Association of Pediatricians, Minnesota Hospital Association, March of Dimes, and Mayo Clinic.

Left to Right: Lobbyist, Commissioner Dr. Sanne Magnan, Rep. Tony Cornish (R-Good Thunder) who later voted NO on the bill, and March of Dimes lobbyist, Phil Griffin.

CCHC Asks Governor to Veto Baby "DNA Warehouse" Bill

Open Letter to Governor Tim Pawlenty - Baby DNA Bill

CCHC Press Conference - Asking Governor Pawlenty to Veto Baby DNA Warehouse Legislation



Petition to Governor Pawlenty: Dismantle the Baby "DNA Warehouse"

CCHC Calls on Gov. Pawlenty to Require Parent Consent for Storage and Use of Baby DNA

WHO VOTED FOR PARENT CONSENT...and what they said in support of parents and privacy

THE SENATE VOTES - see who voted to create a Minnesota "DNA Warehouse" and Eliminate Parent Consent, 4/1/08

URGENT: Minnesota legislature Plans to Create "DNA Warehouse" and Allow Genetic Research on Citizens

* Contact Governor Pawlenty
* Contact Your Senator
* Sign CCHC petition
* Contact Your Representative
* House File
* Senate File

Thus far, the state of Minnesota has illegally collected and claims ownership to the DNA of 780,000 children (soon to be voting adults) and has provided the DNA of 42,210 children to genetic researchers without parent consent. Approximately, 73,000 children are born in Minnesota every year. About 4.2 million children are born across the nation. All of them are losing their genetic privacy and DNA ownership rights. Listen in to an interview of Twila Brase, president of CCHC, as she discusses what's at stake for all citizens in the pending legislation.

Twila Brase (CCHC President)


Tell CCHC you took your child out

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Forms for MN Parents


Key Information

The Newborn Screening Card - card for collecting five bloodspots




CCHC Activities in Support of Privacy Rights, Parent Rights, and DNA Property Rights

2007
2006
2003

Migration of Health Department Forms due to public opposition/CCHC's efforts

Refuse Testing

Require Disposal of Blood and Test Results

Hospital Instructions on Newborn Screening



Citizens' Council on Health Care
1954 University Avenue West, Suite 8, St. Paul, MN 55104
Phone: 651.646.8935 / Fax: 651.646.0100, e-mail